Lynda Mac

http://www.timehttp://www.lyndamac.com/sonline.co.uk/tol/life_and_style/health/article6850290.ece

Privacy ,what privacy you have none with the amount of data stored on families most of it has no business being there kept on file ……..

The only thing is how was all of this “OVER LOOKED”  ? The Child’s Best Interests  what think tank mentality thought this 1 up .The risk was always there  that a child would sooner or later get ill . So who would have the expertise to follow the figures of how many adopted children or adults will need to find a donor? The reason the medical information does not go to adopted parents is not because of any privacy law,  it is more like if they see what they were housing they would not want to know you never know whose “BLOOD YOU ARE GETTING” . There is nothing private about hand over of information contained in a case file ,concerning problems the family  are have suppose to have .The foster carers get a lot of money and a  lot of support along with  a lot of information which is basically not worth (in some cases )the paper it is written on.

I read in the law databases on OU  the Essex case the child with ADHD: the adoptive parents took it back to court they said why were we not told in the first place? The biological parents were simply wrote off as drug addicts : the parents like thousands of other cases were simply labelled unfit to care for the child.

This is enough to send shivers down any normal parents spine as their child/children are being shipped out so fast for adoption there feet won’t touch the ground .In the 42 weeks it takes to  do assessments for court and pull the medical  data .Please note, this  medical data  is supposed to be read by experts for court to write reports ,it never is. It is skimmed by rookies solicitors as so called experts do not bother to read everything that is sent to them there is so much of it . This medical information should go before  a panel of people or experts with a  medical back ground .The findings should be  taken on a purely  scientific  basis .There also needs to be some investigator in the family courts just like there is in the criminal courts .It should never be left to a bogus barm pot to apply junk science theory .

On the subject of  privacy :there is no privacy with social workers sitting next to you in a waiting room an coming in while they take bloods or give injections .The SS turn up at 07:30 am no appointment they start to ask to use the bathroom ,your instincts tell you they are sneaking around your house with the excuse to go to  the bathroom first  . What privacy is there after this? The fact is this whilst the social workers are still  untrained .This excuse is always reeled out in public inquiry cases ,of course like they always are untrained. The chaos this causes when working with professional experts is alarming. When they  were rail roading me for MSBP to court, that was the only thing that they were interested in .When it happened they simply covered up .

They were not interested in the fact that if this child came out of remission from leukaemia he would need a a donor for a stem cell or bone marrow match. A quarter of donors are found within the biological parents.These are the facts . Here is another fact : 1 shoe fits all families. So if this is good enough in principle for us it will be fit enough for your family. They make no room for long term interests for children & families in the future.

Coming back to the gathering of information stage early on  for court . There was plenty of time for this to be considered. This was not done or even considered as they know how to implement the core assessments.It goes like this, it is based on anything but facts, hearsay, lies and finally perjury in heavy layers of statements for court. Why would you need anything else ? it is after all closed court.

There was not 1 professional on this case thought or cared to ask what about this child’s future : the long term interests after we have placed him with another family and wiped out the carer who looked after him all his life. You would think a solicitor with children would have thought about this. If it was your child going to adoption would you want to leave your contact details after this carry on with this group of people. The have been exposed for what they are just child traffickers with one aim only .

There is no mention in the Children Act 1989 of surviving the family courts rule to go on to have the same rights as others in society who have a complete family and more important access to information globally where their family  immediate or extended family all are living. I have said it before : we do not all live in the comfort zone of UK courts RCJ First Avenue House Principle Registry ,or the House of Commons . So how can the general public now have confidence to believe the state  is operating in the” Best Interests of The Child”.

Oh an by the way we have asked people who work in the NHS to look for missing children they are not there they must be dead or out of the country.

Privacy What Privacy !!!

This week I have chased solicitors to see if they can assist with the case an I have found that I have had  no joy there at all.There is no solicitor who is willing to  help me out with regard to returning to court with  these specific issues. I am fortunate to have been offered help from another parent who is also self litigant in person. Thank you so much I am in your debt.

I am only  asking for information as a parent with Parental Responsibility that I was told I could have .

I have evidence that this information was not given to me on any regular basis when they said it would be given to me on a monthly  basis originally . These are the outstanding issues an concerns that I have as a parent wondering if the courts will not make heavy weather over this issue.

Simply because of the serious nature of this case the fact that my son got leukaemia  it would be a travesty to leave this child without a true  genetic key.   I am almost  nearly  5 years down the line an have been able by using the Clayton ruling  to expose the dereliction of duty of care to him , as a looked after child first an later on after the placement with my ex-partner. No family should be left in a situation of we will contact you later if we need you . Cancer does not work like this at all.

Post Final Hearing the heartache of a mother left out long term from her sons life an medical appointments all over a theory which is supposed to have been put to bed 10 years ago MSBP . Is this the price to pay fro draconian law?

There is nothing to go on regarding an update from the hospital to my questions about does C have stem cells stored .So it looks like I will have to write to the courts get permission to raise questions about the stem cell status if my son should come out of remission I want to know did they manage when he was clear of MRD in his spinal fluid to get a new batch of stem cells stored for the future. What could be the harm in knowing this is put in place for him to safe guard his future should he come out of remission. Surely every parent would want the right to know this information,I am wondering if I am pushing the boundaries with  the courts ,will they want to even discuss these matters with me . Especially after the label the experts gave me in court for a MSBP.

For those of you who are following this blog you  will know we are discussing a right to leave a genetic key for adopted children with parents who are losing their children to forced adoption.Some one has now  told me  that in Canada when the children are born they use the cord for studies the same is said for the UK the cord goes off for research , but they are not sure if they keep the cord   for the child or adult to be able to find a stem cells in the future should they need to find them when they become critically ill.

If they did then this would be traceable back to the child using the medical number they issue you when the child is in your care. The arrogance of the courts and the agencies this must be how they manage to find stem cells for children who have been adopted.

We the biological parents are being left in the dark about such matters .We are asking out of concern  for children if we would be allowed to leave a genetic key and then on the other hand wondering if this is already done when you gave birth did they store anything from the cord . As you know families move out of the area and also out of the country in the case of Graham Barnell who was adopted you only had to see the family and friends rallying around to help him in his search for a rare gene he needed.

This would be just highlighting on 1 of the problems facing children who are out of the care system .There are many  problems facing adopted parents or the children if left dealing with leukaemia. The NHS offers a service so does adoption but not a global search for a gene this you will have to under take when the problem of where do you find your own genetic key. Sometimes families are left with a child who is critically ill , who is left doing the search on their behalf. You can not be sat at a bedside and on the fone ringing around listening to all the difficulties and costs to be paid for a search for your information about you & your lost relatives.

Which brings me back to adoption cases how can the adopted parents of your child have access to this  information which ethically belonged to both the mother and the child originally .

Maybe now women giving birth will say .Stop wait a minute what do you think you are doing with the body parts when giving birth to their son or daughter. With so many forced adoptions an babies removed at birth.This is a serious thought for mothers who want to fight back against the state legally kidnaping their child. They could say this I do not willingly hand over the cord or other parts connected with delivery of a birth.

This could cause so many problems for children as women say no you are not having that it is being taken for storage should my child need this for his/her future We the parents have rights too .

Is the umbilical cord going to the right research who is benefiting from this ?

http://www.adonorforgraham.com/

http://www.adonorforgraham.com/images/Graham needs a donor.UK.pdf

I have not had a school photo of my son since 2004 ,I requested one as I have parental responsibility as a none resident parent. This feels so weird  to have been ruled out of your child’s life an the only thing left is the odd photo. If you tried to tell people what closed court is like they would not believe you. I am over the moon that my son  is looking so well after 3 years treatment for leukaemia an the after  effects of the treatment which was for 3 years.

I have worried a lot about him as I have had no contact an been cut out by the courts ,concerning his medical treatment  an appointments at hospital. This was  after being labelled with a lighter label of MSBP. Yes I know they say it has not been used for 10 years .

It was used against me in 2005 I am waiting for the decision after making complaints to the  GMC  about the doctors who done the reports.

If leukaemia is the biggest killer of teenagers in Britain an there is a petition on number 10 Downing Street asking for help for families. Where are the figures for deaths of adopted children/adults or the figures for adopted children in the NHS system looking for stem  cell donors or bone marrow donors.

I want to know the statistics under Freedom of Information Act .

This question is to Gordon Brown & Jack Straw , for the purpose of this question ,please no time wasters like Mr Straw  said yo my last question about families barred out of court on section 91/14 to fight for their children in adoption cases .

The computers would not be able to cope . We have figures &  facts and research for everything under the sun apart from this issue. Maybe it is far too sensitive an issue to discuss with the general public ,or are ,our government just to embarrassed by the fact that this system has nothing much in place at all for adopted children,adults.

So what were you saying about  give them a voice? give them the facts adopted parents & children .

thttp://www.cancerchat.org.uk/clearspacex/thread/2163

This is the new topic that most families and MP’s will not be comfortable discussing Leukaemia the biggest killer of Children & Teenagers  . Now I step in an test the waters on a forum an bring up the rights of adopted children.

I am new to the forum an would like to talk about children and the problems they face if they are in care or are adopted, or from family who have separated due to divorce etc. My son had ALL T cell so I have first hand experience of how quickly things can escalate for them when they become so acutely ill. I have been to see Tim Loughton the MP also the children’s shadow minister we had a discussion concerning the rights for adopted children to be able to find a true genetic key ,which they might need to find in an acute circumstances.

It is this time of month when the Leukaemia Care Magazine drops on the mat in our home. It is everyones Anniversary for a celebration it seems ,but it is clearly  not a cause for celebration for us as a family.

Nearly 5 years on an no resolution insight from the courts. Clic Sargent want to know how being diagnosed with cancer, how it would be affecting  children an their schooling, friendships ,family and home life right now?

I am tempted to say what family life ?We have  been marginalized long term out of my sons life by courts and social services.

Friends what friends, post court placement there were no regular  allowances made for contact to be kept up.

There was no allowance for a phone call home on Christmas day when my son was isolated in care in a side ward in hospital due to being admitted with an infection an also neutrapenic . This was at 7 years old

Schooling  well if you count losing your hair an having treatment for 3 years  ,an feeling wretched most of the time ,tired out dealing with  infections having to live with the demands of meetings for court,  hospitals, social workers , & the intervention of  foster carers.

For a 7 year old child living apart from his family ,dealing alone with his experience of  leukaemia, an then  later on being taunted into fighting with your peers in the playground : concerning gossip at the school gate when you were taken into care.

If you account for support, or l shall we say lack of it when children are saying to you  ”your mother is no good.” Feeling isolated an then nearly 5 years later being sent a form to your home your not allowed to visit to ask you do you want to take part in  an a fantastic opportunity to tell you direct how this feels to have dealt with your problems.

What would this study include ?Would it involve children like my son ?With social stigma an problems put on him, or created for him  by being a looked after child?

I doubt Clic would  be able, or would be willing to support  a child like this or would ask  a child like him how he felt ,or how they could help him survive.

If this is child focused ,then contact this  child and many more like him, as he can not be the only child to be removed on an EPO.Currently this child is still missing many years later missing his mother and brother also an extended family.

I will forward your invitation  to the missing child .Then ask this child about how this all felt. Please make sure you sincerely improve life for these children. If you do not then, I will contact the children in care and give them a voice.

Dear Clic this is pretty much were we are up to . If you still want to include us in your feed back survey which will deal with all families experiencing  living with cancer.

Now Clic want to know how this felt. So seen as all children are not included, I wish to  support  the children who like my son must be undergoing the same devastating experience  of child hood cancer , separation from their family and going through normal life an how the professionals react to feed back.

Let us move on  now to the genetic key factor  issue  .Until I manage to push this through for all adopted or missing children. At present the leave a legacy is only going to cover children who have contact to their own families.

The” leave a legacy ” message on the back of the Leukaemia  Care magazine for families, the adopted children have no such voice about finding a legacy from their  blood family. The subject must still be too sensitive an issue.

The courts will need to address such issues of importance  in the future,as in recent  adoption cases.There are parents brave enough to want to address important issues as 1- 8 children diagnosed with childhood leukaemia.These parents  are asking for children to be able to find a true genetic key.

This has started already without being  prompt by the corporate parent being involved.In-fact the corporate parent has not given thought to this matter or knows how to deal with this controversial subject on a human rights level. The human rights of both parties the child & the parent.They may control the child but do not control the parent on this matter of leaving stem cells or bone marrow donation.

If you are denied a right to leave stem cells for a child being adopted then take it out to the ECHR’s . Any child being adopted will know what a lovely gift or legacy the biological parent thought if them before they were taken away for adoption if they find this in place .

It will not cost you a fortune, it will save a missing child/adult a lot of trouble, heartache an suffering if they find out they do no have a right to life as other children and adults have simply because you took the time .

The courts do not want to deal with a right to LIFE for ALL Children this is very clear to us having gone through the system. Please consider this post for approval as our life experience of leukaemia in your next months Magazine.Thank you .

MAKING CONTACT WORK

THE FACILITATION OF ARRANGEMENTS FOR CONTACT BETWEEN CHILDREN AND THEIR NON-RESIDENTIAL PARENTS; AND THE ENFORCEMENT OF COURT ORDERS FOR CONTACT

A CONSULTATION PAPER ISSUED BY THE CHILDREN ACT SUB-COMMITTEE OF THE LORD CHANCELLOR’S ADVISORY BOARD ON FAMILY LAW

Yesterday I rang the NHS  to find out basic facts about how this system works for adopted children looking for their biological parents. The lady was lovely she explained that sometimes the GP’s would not hand over information. After hearing this it just made me even more determined to reach the blood parents facing fast track adoption cases. Next stop was adoption  GRO 0151 471 4830 I was told you had to pay independent agencies to look or search for birth parents it could with counselling take up to 8 weeks from beginning to end. Alarm bells ringing thinking now what if the child like my child got ill with ALL T cell leukaemia his other parent was a mere seconds away in a matter of a phone call. The word acute really does have to be registered here and now. In some cases it could be an acute situation.This believe me is a long one to go through.

I asked about the original birth certificate ,again you would never know this has been changed. They told me it is a legal document it can not be destroyed. It might as well be as you would not know ,it says on another record which the registrar has is has simply been re-registered. You would have to directly ask if you had been adopted. Maybe you could try to ask using the  Data Of Protection Act 1998 section 7.3 .

Why not put something in place for you child ? The courts are not concerned about the statistics concerning  the rate of childhood cancer.What is more  concerning now is this,what with more children now being targeted to be removed from birth with so called problem families to hard to fix , the latest headlines from Barnardos  surely this makes good sense to put something in place for a child or adult.  .http://www.cypnow.co.uk/bulletins/Daily-Bulletin/news/936517/?DCMP=EMC-DailyBulletin

This is not an option the courts or  the NHS have thought to offer for families in these situations . I mean we have moved on from the days of daring to ask about organ donation to carrying donation cards.I think this may be something to indicate the kind of parent you would be ,when you  have considered this option for your child .This is something that as yet is not addressed by the courts when they say they are removing the child as a precaution on safety grounds.

The  NHS an GP services system is  only covering  the  families within the UK .So that is really  not going to be including of all children an families within the UK if they have moved aboard post final hearing.

Right I have got your attention? What are your human rights to leave a genetic key in the family courts for  your children? I bet you have no rights at all. Please can someone find me an MP or a barrister to show me  case law where someone has been successful in having the right to leave a true genetic key.

http://www.fwbusinesspress.com/display.php?id=10946

I am looking an waiting for a parent to come back an tell me they have been able to do this before their case is closed for adoption.If there are no such cases and all the families in transit to fast rack adoption before this is considered then  god help the children .

http://protectfamily.ning.com/profiles/profile/show?screenName=368biq4wpdgc3&from=fbhttp

://www.ic.nhs.uk/services/nhs-adoptions-service/passing-on-vital-medical-information

GRO Adoptions 0151 471 4http://www.dna-prokids.org/?page_id=3〈=en830   please can you ask how long this would tale to find your original birth certificate with parents real names on it . Then wait to find out if the GP will be willing to give out the information to you if you are ill an in need to find a donor.  This on top of being ill an having treatment would be your worse nightmare. Only to find you parents have moved abroad or are not on the register.