For most families they will not know what hits them when they find out that there child has leukaemia they say it can turn your life upside down this is an understatement we were no different in this respect it turned us upside down except we got a kicking instead of support.
I was collected 1 day by a woman who run Acorn House she walked down the corridor of C2 and walked me over to this is accommodation to stay here in Acorn House in 2004 for a very short while .The truth was I could not stay on the ward as the doctor was treating me as suspected TB patient and they were in panic mode the risk to the sick children having treatment .
I was taken ill with a chest infection,pneumonia whilst staying on a ward when my son had to have treatment for leukaemia . So I guess walking around in a face mask on the ward may have put many parents off.I was not the first to get ill or be rushed with exhaustion to A& E an I doubt I will be the last.
Acorn house was a kind of a refuge for families to stay on site as some families never get to go home again. There are some people who are returning from time to time to read my blog to find out what had happened to us to cause the start of a court case.
Please let me point out that I am writing a book ,and there will be only piece meal sections to glean the real story about what happened to us you will have to wait for the book ”When Will I Be Coming Home?” to be published.

So for any staff from Addenbrooke’s hospital reading this blog , hold onto your hats there will be room for only a section for facts & truth about what really went on in 2004-2005, there will be no room fort hearsay or false allegations made by 3rd parties relaying to a kangeroo closed court ……
I am tempted to do a private section with nurses hand held notes please be mindful that this paperwork has gone out to 3rd party now the GMC are pulling the transcripts from court ……
So if you are in need of pain relief you know where to go ,as I am going to be brutal in my description of certain staff on the ward,It is important to say that some of the staff were lovely, and some of them well I think they need to resign and check into a mental heath ward for a rest themselves instead of trying to refer parents .
This was never what I would call a home from home experience. I was given a room with 2 single beds in it. Sometimes my eldest son slept in the bed next to me and my friend A took over a night shift giving us a break.
Just to re wind what happened ,and how I found out what was wrong with my son .I simply got off a plane from Gran Canaria we had been on holiday for 14 days ,I checked out my bags at Luton Airport and took my very tired child ,who had a bad cough ,which got worst due to the flight to an NHS Walkin centre. No big thing a low key visit rather than go straight to hospital and the rest is history. I was for the next few weeks sleeping rough on floors on cots without adequate bedding to keep me warm suffering from pneumonia.
So this is our experience of Addenbrookes Hospital , I had never met a doctor like it ,very high handed and no sense of humanity at all some of the staff were awful talking about parents in the next bed who had been up all through the night with their child were deemed unfit because the did not respond to the nurse waking them up in the morning.
I made complaints about my sons care and was fast tracked to see psychiatrists after psychiatrists and a psychologist.
It is also more important to be noted I had requested for us to be moved to another hospital as I could not get any information from Dr Burke ward C2 when my son would be likely to come home or moreover how he was doing.This resulted in him trying taking out an EPO against me keeping my son locked in a ward when he was ready to go home it was necessary for statements to flow from many individuals working on ward C2 for court .
At the time I was scared to read the statements ,now I think the same could be said of the staff who committed perjury when writing them for court .The tide has changed and parents are showing this paperwork using the Clayton v Clayton ruling.
I have to state clearly when I say this was my son’s first every experience of suffering from neglect . For the first time ever,in his young life when he was heard to say I have had a wipe with baby wipes a nurse asked him have you had a bath . There was nobody there to give him a bath or hold his hand when he needed this.Why ? they got a court order and removed his mother who normally would do this for him off the ward so he had to wait until a nurse asked him do you want a bath.
I have to say now that nothing prepares you for staying on a children’s ward and not being told when you will be going home and I mean nothing.
In the first instance that I can remember was being shown around by Linda Walker , she walked at a fast pace with a clicker thing in her pocket counting her steps as she went about her daily business.We got talking about stuff and she had told me she stayed in the hotel next to ours in Gran Canaria we had both just returned back of holiday .It was our 4 holiday within 4 months to the date of finding out C had been diagnosed with leukaemia.
Later on she gave me a room and a set of keys, along with a shelf with stickers to put on my food . 1 shelf in a cupboard and 1 shelf in a fridge freezer. I spent a very short time in here it was the saddest place on earth surrounded by other grieving families from all walks of life. I eventually got out of Addenbrookes to go home for a couple of days .
I fell onto the first train which was heading into London.I had been told so many times in the last few weeks move . Move here go there ,for the first time in weeks I felt like sitting down and staying put.Do you have a 1st class ticket? jobs worth the ticket collected pointed out it was first class. I asked how much for an upgrade paid this, and then got a bottle of wine and something to eat.

The only nice thing I can remember was parent who put fresh flowers on the massive dining table in Acorn House. I often wonder what happened to some of those parents & their children how they are coping now and how many children survived the Addenbrookes experience. I know I am not the only 1 that lost care of their child as I see people find my blog when they type in EPO Addenbrookes what will happen…..
My son has spent the last 5 years waiting for answers what is wrong with his mother, making his own observations and clearly saying at 7 years old ,but so many other mothers can look after their children.He asked “why can’t she look after me all the other mothers can look after their children?”
My sons experience prior to this was of being well looked after and cared for there was never a time when there would have been a referral to social services.
We will all have to wait a bit longer to tell you this answer ,of why I can not look after you for the same reason as the 30,000 other mothers can not look after their children(not so rare is it 30,000 other mothers all have this MSBP ).
If you throw a lot of taxpayers money at a court case , the experts will come up with a reason, and that label was originally intentionally used by Dr Sturge before anyone had even read my medical notes. So I am just another victim ,who habeen slain once again by the use of the junk science theory MSBP so until I clear my name or make changes we will not be getting to see each other again.
http://www.teenagecancertrust.org/support-network/jimmyteens/http://www.sickchildrenstrust.org/homes/acorn_new141107.pdf